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WHATA statewide registry of South Carolina residents diagnosed with Alzheimer’s disease or related disorders.
WHYTo provide a comprehensive database for dementia tracking, research, treatment and planning.
WHEREArnold School of Public Health at the University of South Carolina.
SC Department of Health and Human Services.
SC Department of Mental Health.
USC School of Medicine. SC Office of Budget and Control.

Program Description

“The Alzheimer’s Disease Registry is a comprehensive statewide registry of SC residents diagnosed with Alzheimer’s disease or related disorders (ADRD).
As the nation’s most comprehensive registry of its kind, the Alzheimer’s Disease Registry has maintained a record of diagnosed cases of ADRD in the state since 1988. The Registry comprises multiple data sources, including inpatient hospitalizations, mental health records, Medicaid, emergency departments, memory clinics, chart abstracts, vital records, and long-term care evaluations.”

"... It is one of only three statewide registries for Alzheimer’s disease and related disorders in the United States. It continues to collect and provide prevalence data to public and private entities for planning, advocate for caregivers, and foster research in risk factors for ADRD including the risk of institutionalization."

The Alzheimer’s Disease Registry provides older adults and their families with access to quality, reliable health and long term care service. The organization also provides education and training on long term care issues, develop programs such as Dementia Dialogues and conducts research on aging and public health issues.

The goals of the Alzheimer’s Disease Registry are to:

  • Maintain the most comprehensive and accurate state registry of Alzheimer’s disease or related disorders in the nation.
  • Provide disease prevalence estimates to enable better planning for social and medical services.
  • Identify differences in disease prevalence among demographic groups.
  • Help those who care for individuals with Alzheimer’s disease or related disorders.
  • Foster research into risk factors for Alzheimer’s disease or related disorders.

    The Alzheimer’s Disease Registry has various publications and presentations on Alzheimer’s and other dementia on topics such as:
  • Evaluating Hospital Care for Individuals with Alzheimer’s Disease.
  • Risk of Institutionalization Among Community Long-Term Care Clients With Dementia.
  • Life Expectancy for Individuals with Alzheimer’s Disease or Related Disorders.
  • Ethnic differences in the burden of caregiving.
  • Epidemiology of Alzheimer’s disease.


Find out more about the Alzheimer’s Disease Registry

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